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  • Home
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    • Blog & E-Newsletter
    • Contact Us
  • About CGD
    • What is CGD?
    • Diagnosing CGD
    • Managing CGD
    • Treatments & Providers
    • X-linked CGD Carriers
    • Resources
  • Donate
  • Get Involved
    • Coffee & Carriers Zoom
    • Financial Assistance
    • PC's for People
    • CGDAA Events

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RESOURCES FOR PHYSICIANS AND FAMILIES

Made possible in part by an unrestricted grant from Orchard Therapeutics

Chronic Granulomatous Disease (CGD) is a rare, inherited genetic disorder.


On this page we have assembled resources for Primary Care Physicians to find out more about CGD—how to diagnose it, how to advise patients and their families and potential curative options. Introductory questions can be found towards the top of the page; more in-depth questions can be found here.


The short introduction below is from world-leading expert in CGD Dr. Harry Malech of the National Institutes for Health in Bethesda, MD, USA.

Download a pdf "What is CGD?"

DR. MALECH ANSWERS COMMON QUESTIONS

Click on one of the videos  below to see Dr. Malech answering commonly-asked questions that PCP's ask about CGD. 

VIDEO 01: What is CGD? And why should it not be considered a condition that only affects males?

VIDEO 02: What are "red flag" symptoms for potential presence of CGD?

VIDEO 03: What specialists should be referred to if CGD is suspected?

VIDEO 04: What is antibiotic prophylaxis—and can it lead to antibiotic resistance?

IN-DEPTH QUESTIONS FOR ADVANCED PRACTITIONERS

In the videos below, Dr. Malech tackles some more in-depth issues around the treatment of CGD.

VIDEO 05: Pitfalls to avoid when analysing DHR test results

VIDEO 06: Example of how to look at the "curve" of a DHR test

This educational initiative has been made possible by an unrestricted grant from Orchard Therapeutics


Content created with love for CGDAA by Learn Interactive

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