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We understand how stressful these situations are along with the financial burden that accompanies them.
Fortunately, there are resources and organizations that can provide assistance. The Jeffrey Modell Foundation provides a program called “Roots & Wings”. It was established to provide travel, “Wings”, and related support, “Roots”, to families whose child has been identified with a potentially life-threatening Primary Immunodeficiency.
Learn more about Roots & Wings here.
Another potential resource is Angel Flight.This particular organization is composed of a group of pilots who help people in need by providing air transportation. For more information about their services, visit their patient information tab here.
Another organization worth mentioning and reaching out to is the Children’s Organ Transplant Association (COTA). COTA provides fundraising assistance to children who need a life-saving transplant. They do not charge for their services, and may put you in contact with the support you need. Their information page is herewith the option to fill out their contact forum.
Also, the Assistance Fund (TAF), an independent charitable patient assistance foundation, helps CGD patients and families face high medical out-of-pocket costs. The program is designed to help eligible individuals pay for their out-of-pocket costs for treatment, such as copayments, health insurance premiums, and incidental medical expenses, resulting from the condition.
To learn more or determine eligibility for financial support, visit tafcares.org or call (855) 951-2672 to speak with a Patient Advocate.
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