We at CGDAA understand how stressful these situations are along with the financial burden that accompanies them. Fortunately, there are resources and organizations that can provide assistance.
The Jeffrey Modell Foundation provides a program called “Roots & Wings”. It was established to provide travel, “Wings”, and related support, “Roots”, to families whose child has been identified with a potentially life-threatening Primary Immunodeficiency. Learn more about Roots & Wings here.
Angel Flight is composed of a group of pilots who help people in need by providing air transportation. For more information about their services, visit their patient information tab here.
Children’s Organ Transplant Association (COTA) provides fundraising assistance to children who need a life-saving transplant. They do not charge for their services, and may put you in contact with the support you need. Find information or fill out their contact form here.
The Assistance Fund (TAF), an independent charitable patient assistance foundation, helps CGD patients and families face high medical out-of-pocket costs. The program is designed to help eligible individuals pay for their out-of-pocket costs for treatment, such as copayments, health insurance premiums, and incidental medical expenses, resulting from the condition.
To learn more or determine eligibility for financial support, visit tafcares.org or call (855) 951-2672 to speak with a Patient Advocate.
CGD Association of America
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The contents of the CGD Association of America site, such as text, graphics, images, and other material contained on the CGDAA Site (“Content”) are for informational purposes only. The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding CGD or any medical condition.