It’s almost here!

This event aims to recognize the vital importance of self-care for carriers of X-linked Chronic Granulomatous Disease (CGD), who often face challenges in identifying their symptoms and seeking medical attention. Further, as the "key decision makers" of the family, they hold a special place in determining care and treatment for their loved ones who may also be carriers or patients.

We are gathering our X-linked CGD community together in order to connect, share experiences, learn from CGD specialists like Dr. Jennifer Leiding, and help participants connect with their well-being. 

Our retreat is crucial for helping carriers shift their mindset from being caregivers to prioritizing self-care - something many may not have done in years. By encouraging women to reconnect with themselves, we empower them to advocate for their own health as well as the health of their children.