CGD ASsociation of America
CGD ASsociation of America
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    • Home
    • Ways to Give
    • About Us
      • Who We Are
      • Partners and Sponsors
      • Mission & Accomplishments
      • Blog & E-Newsletter
    • Living with CGD
      • What is CGD?
      • Diagnosing CGD
      • Managing CGD
      • Treatments & Providers
      • X-linked CGD Carriers
      • For Clinicians
    • Getting Help & Support
      • CGDAA Zoom Calls
      • Financial Assistance
      • PC's for People
      • CGDAA Events
      • Carrier Connection
    • Contact
  • Home
  • Ways to Give
  • About Us
    • Who We Are
    • Partners and Sponsors
    • Mission & Accomplishments
    • Blog & E-Newsletter
  • Living with CGD
    • What is CGD?
    • Diagnosing CGD
    • Managing CGD
    • Treatments & Providers
    • X-linked CGD Carriers
    • For Clinicians
  • Getting Help & Support
    • CGDAA Zoom Calls
    • Financial Assistance
    • PC's for People
    • CGDAA Events
    • Carrier Connection
  • Contact

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Carrier Connection Conference

For X-Linked Female Carriers of CGD

This event aims to recognize the vital importance of self-care for carriers of X-linked Chronic Granulomatous Disease (CGD), who often face challenges in identifying their symptoms and seeking medical attention. Further, as the "key decision makers" of the family, they hold a special place in determining care and treatment for their loved ones who may also be carriers or patients.


We are gathering our X-linked CGD community together in order to connect, share experiences, learn from CGD specialists like Dr. Jennifer Leiding, and help participants connect with their well-being. 


Our retreat is crucial for helping carriers shift their mindset from being caregivers to prioritizing self-care - something many may not have done in years. By encouraging women to reconnect with themselves, we empower them to advocate for their own health as well as the health of their children.

Schedule

10/27/2025

Carrier Conference Day 1

6pm

-

8pm

Ben Hotel

Event Details

10/27/2025

Carrier Conference Day 1

Welcome address and cocktail reception

6pm

-

8pm

Ben Hotel

10/28/2025

Carrier Conference Day 2

8am

-

6:30pm

Ben Hotel

Event Details

10/28/2025

Carrier Conference Day 2

7:00 am: Sunrise yoga on the beach (optional)

8:00 am: Breakfast

9:00 am: Welcome address

9:15 am: Participants give five minute intros and sha...

Event Details

8am

-

6:30pm

Ben Hotel

10/29/2025

Carrier Conference Day 3

9:30am

Ben Hotel

Event Details

10/29/2025

Carrier Conference Day 3

Breakfast and closing ceremony

9:30am

Ben Hotel

CGD Association of America

2005 Palmer Ave, #197, Larchmont, NY 10538

(917) 309-3489

Copyright © 2018 Chronic Granulomatous Disease Association of America - All Rights Reserved. Sec501(c)3 tax-exempt non-profit organization


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The contents of the CGD Association of America  site, such as text, graphics, images, and other material contained on the CGDAA Site (“Content”) are for informational purposes only. The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding CGD or any medical condition.