For many years, X-linked female CGD carriers were thought to be asymptomatic, but research shows that they can have serious illnesses, ailments, mental health, and quality of life issues related to their condition.
While it's true that X-linked CGD carriers are often consumed with care and concern for their sons with X-linked Chronic Granulomatous Disease (CGD), even after a successful transplant, this article asks: Who takes care of the carriers? Read more.
At the CGD Association of America, we are working to support our X-linked CGD women and girls. The CGD Association of America has initiatives to support out moms, daughters, and grandmas.
Email us at: info@CGDAA.org to get involved, get empowered, and find out more.