CGDAA Press Room + Accomplishments
Publications and Media
CGDAA in the news and other media.
Florida Weekly: Global Experts Unite
A three-day event blends science and philanthropy to support CGD patients. Read more.
FDA Patient Listening Session for CGD
On August 11, 2025, several CGD patients and caregivers shared their experiences during a Patient-Led Listening Session with the U.S. Food and Drug Administration (FDA) so its members could learn more about the symptoms, treatment options, challenges in getting a diagnosis, as well as the complex care needed for a child with a rare disease and its impact on the child and entire family. Read the PLS summary.
Remember the Girls: "collectively coeXisting" podcast
Each month, their Carrier Connections program features a different X-linked condition with the goal to increase awareness and education of X-linked conditions and how they impact females. Listen to their episode with CGDAA's Felicia Morton here.
Clinical Immunology: X-Linked Carriers Study
The CGDAA's executive director Felicia Morton, along with CGDAA medical advisory board members Dr. Jennifer Leiding and Dr. Harry Malech, have authored a first-of-its-kind research study regarding female carriers of X-linked CGD, entitled "The high symptom burden in female X-linked chronic granulomatous disease carriers."
The study was published in the November issue of “Clinical Immunology.” Read the study here!
CGDAA Featured in PIDTC Newsletter
The CGD Association of America's recently published article in "Clinical Immunology" regarding X-linked female carriers of CGD was featured in the November issue of Primary Immune Deficiency Treatment Consortium's (PIDTC) Newsletter.
To check out this special report and learn more about the CGDAA's partnership with the PIDTC, the top research consortium for primary immune deficiencies in North America, read more here.
The CGDAA hosted an exclusive webinar exploring the latest advancements in transformative therapies for Chronic Granulomatous Disease (CGD). This event featured Dr. Donald Kohn, UCLA Professor of Microbiology, Immunology, and Molecular Genetics, renowned for his expertise in gene therapy for CGD, alongside Felicia Morton, Founder and Executive Director of CGDAA. Dr. Kohn shared cutting-edge insights into transformative therapy options, followed by an interactive Q&A session. Watch here.
Dr. Jennifer Leiding in collaboration with CGDAA, PIDTC, and Dr. Mary Ann Miranda developed a new study that allowed X-linked carriers of CGD to self-report their symptoms reveals a broader range of health problems associated with carrier status, requiring appropriate diagnosis and treatment, The study was the first of its kind at this scale for X-linked carriers with a total of 171 respondents. Learn more.
CGDAA + Conferences
The CGDAA contributes value information on the latest in CGD treatment and research at the top immunology conferences in the United States.
2025 Clinical Immunology Society Conference
The CGDAA hosted two events focused on advancing research and raising awareness for Chronic Granulomatous Disease (CGD).
One of the highlights was our abstract poster presentation of the groundbreaking study led by Dr. Christin Deal, MD, of UPMC Children’s Hospital of Pittsburgh and presented by Dr. Jennifer Leiding, MD, of Johns Hopkins All Children’s Hospital. This research explored post-transplant outcomes for individuals with CGD and revealed highly encouraging results. Read more.
2024 IDF Conference
Harry Malech, MD shared the latest advances in CGD research and treatments with his perspective on the new advances in stem cell transplants and gene therapy ( moderated by Felicia Morton).
The CGDAA hosted a dinner, sponsored by Prime Medicine, which provided a platform for CGD patients and families to share their inspiring stories and experiences, contributing to Prime Medicine's mission of developing transformative therapies.