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CGD ASsociation of America
CGD ASsociation of America
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    • X-linked CGD Carriers
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    • CGDAA Zoom Calls
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    • Ultra-Rare Consortium
    • Blog & E-Newsletter
  • Contact
  • More
    • Home
    • Ways to Give
    • Living with CGD
      • What is CGD?
      • Diagnosing CGD
      • Managing CGD
      • Treatments & Providers
      • For Clinicians
    • X-Linked Carriers
      • X-linked CGD Carriers
      • Carrier Connection
    • Resources
      • Mental Health Resources
      • CGDAA Events
      • CGDAA Zoom Calls
      • Financial Assistance
      • FDA PLS for CGD
    • About Us
      • Who We Are
      • Partners and Sponsors
      • Press Room & Achievements
      • Ultra-Rare Consortium
      • Blog & E-Newsletter
    • Contact
  • Home
  • Ways to Give
  • Living with CGD
    • What is CGD?
    • Diagnosing CGD
    • Managing CGD
    • Treatments & Providers
    • For Clinicians
  • X-Linked Carriers
    • X-linked CGD Carriers
    • Carrier Connection
  • Resources
    • Mental Health Resources
    • CGDAA Events
    • CGDAA Zoom Calls
    • Financial Assistance
    • FDA PLS for CGD
  • About Us
    • Who We Are
    • Partners and Sponsors
    • Press Room & Achievements
    • Ultra-Rare Consortium
    • Blog & E-Newsletter
  • Contact
CGD Association of America x Give An Hour

Mental Health Resources

Rare disease such as Chronic Granulomatous Disease (CGD) has a broad and lasting impact in both daily life and long-term mental health and well-being. The CGD Association of America and Give An Hour have partnered to provide resources and support to the CGD community.

Mental Health Resources

Self-Compassion and Self-Care

Self-Compassion and Self-Care

Self-Compassion and Self-Care

Includes resources such as My Self Care Toolbox and Self Care Audit.

Learn more

Mental Health & Rare Disease

Self-Compassion and Self-Care

Self-Compassion and Self-Care

Mental health strategies and tools for coping, healing, and connection while navigating rare disease.

Watch Now

Give An Hour

Women's Mental Health

Women's Mental Health

For 30 years, from community advocacy to institutional change, Julie Wells has immersed herself in non-profit culture and issues that affect disenfranchised populations.


Julie and her team are available to help CGD community. Please send email to info@cgdaa.org if you are interested in getting in contact with her

Give An Hour Website

Women's Mental Health

Women's Mental Health

Women's Mental Health

Research has shown that depression, anxiety, and panic attacks are one of the clinical manifestations that carriers can experience.


See also Solutions to Supporting Women's Mental Health

Learn more

Caregivers, Family, & Friends

Finding Mental Health Support for Rare Disease Caregivers

Finding Mental Health Support for Rare Disease Caregivers

Finding Mental Health Support for Rare Disease Caregivers

You don’t have to “earn” therapy by reaching your breaking point — you deserve support now.

Learn more

Self Care for Caregivers

Finding Mental Health Support for Rare Disease Caregivers

Finding Mental Health Support for Rare Disease Caregivers

Learn about establishing healthy habits outside of caregiving. 


See also "Taking Care When You Are A Caregiver"

Learn more

Creating Support Systems

Finding Mental Health Support for Rare Disease Caregivers

Creating Support Systems

Since the rare care journey is often emotional and difficult, it is important to prioritize support.

Learn more

Rare Dads

Post Traumatic Stress & Rare Caregivers

Creating Support Systems

Despite their growing numbers, male caregivers often face unique challenges due to societal expectations and misconceptions about caregiving and masculinity.

Learn more

Post Traumatic Stress & Rare Caregivers

Post Traumatic Stress & Rare Caregivers

Post Traumatic Stress & Rare Caregivers

Rare Caregivers may not immediately recognize their experience as traumatic or know the signs of PTSD.

Learn more

Mental Health Toolkit

Post Traumatic Stress & Rare Caregivers

Post Traumatic Stress & Rare Caregivers

Downloadable resources designed to support emotional well-being, coping, communication, and connection while navigating the challenges of the rare disease journey.

Learn more

Crisis Support & Additional Mental Health Resources

If you or someone you love is struggling emotionally or experiencing distress, support is available.

  • Call 911 for emergencies or immediate safety concerns.
  • National Suicide and Crisis Lifeline: call or text 988 for free, confidential support 24 hours a day, 7 days a week, or visit 988lifeline.org.
  • Mental Health Hotline: (866) 903-3787
  • National Alliance on Mental Illness (NAMI): nami.org
  • Consider speaking with a mental health professional, counselor, therapist, or social worker familiar with chronic illness or caregiver support.

CGD Association of America

info@cgdaa.org

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The contents of the CGD Association of America  site, such as text, graphics, images, and other material contained on the CGDAA Site (“Content”) are for informational purposes only. The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding CGD or any medical condition.